Possible Sjogens Syndrome?
HI Vicky and welcome to the forum.
It is possible you have seronegative Sjögren's, so in this case the determination has to be from the clinical symptoms/history and not the labs.
If they match the SS profile well, it likely is SS.
Coexistence of Sjögren's syndrome with lupus, is also possible.
However, the good news-possibly- is that because of your hypothyroid diagnosis, there's a chance that your SS or Lupus might be treatable (normally there's no effective treatment for it other than maintenance drugs), in the event that your hypothyroid is at least partially unresolved and directly linked to your suspected SS/lupus symptoms, including the butterfly rash!
Poof! This was a long sentence.
So here's what I would suggest you do.
Low thyroid function, even if you are on thyroid meds/supplements, will
be indicated by doing Dr Barnes Basal Temperature Test.
Just do an online search for it and follow the simple instructions precisely!
Conventional serum Thyroid testing is not necessarily accurate, nor indicative of cellular thyroid function and every cell of the body has thyroid receptors. In the event the thyroid hormones do not enter the cells, what good will the "normal" serum levels do???
IF I were you, hmm, what would I do-besides the above test?
Probably I would ask my primary care doctor to increase the dose gradually-hopefully you're on natural desiccated thyroid-according to symptoms and of course if your temp. test indicates low thyroid function.
After some tweaking for a few weeks, the dosing will be matched better to what your actual thyroid needs are and the side benefit might be a gradual resolution of your SS/Lupus symptoms.
The butterfly rash is very characteristic and I could spot it easily from across the room. It is unlikely caused by sun exposure.
Just do a comparison with online images. Look for red or purplish colors,
lightly scaly and in the shape of a butterfly.
I cannot tell you to avoid gluten since you are Celiac's and you already know this very well, however, make sure you have a complete list printed of all the "illegal" foods and products.
Gluten is often included in products nobody suspects like playdough, shampoo, stamps, many cosmetic creams etc.
But I can tell you to avoid cross-reactive foods with gluten, which could be anything your immune system reacts to the same as gluten, because of similarity in the molecules. Dairy is tops at almost 50% of all celiac's.
You may want to do Dr.Coca's Pulse test, which will indicate which foods/drinks your immune system may treat as offensive.
It's a free download and it takes a week to complete, however, there's a fast version, perhaps not as accurate, but quite acceptable.
If interested, I can dig it out and send it to you.
Oh I think I have it saved here somewhere.
Dr. Cocoa's Pulse Test (simplified version)Just sit in a chair and come to rest for about 5 minutes. Take your pulse for a full 1 minute (not the 15 sec. multiply by 4 thing). Then put whatever you want to test in your mouth and chew it for 30 seconds. If a liquid, just swish. Then take your pulse again.
If you find it is faster by 6 beats, you are allergic or have a sensitivity to it.
If you have type “O” blood, use 4 beats as the criteria instead of 6.
It’s that simple!
I hope this helps, however, please note that my suggestions and comments do not constitute medical advice.
Let me know if you need any further details.
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