Tethered Cord Syndrome
Hi and welcome to the Chiari forum.
I am so sorry ur little guy is going thru this especially at that age...so young and no way for him to understand.
TC can be difficult to spot on MRI even with the precursor nods from the dimple and tuffs of hair.Is he having bladder issues?
My one friend has had the surgery, she is a grown woman and it can be painful as with ne surgery.I was scheduled for it last May and 1 week b4 it was changed to a PFD for chiari....I was told I still need to have it done, but I am not rushing into it at this time as I was still recovering from the other surgery.
Yes it is possible to need to have the surgery repeated as scar tissue can cause the cord to reattach......
May I ask y if he has no symptoms is he having this surgery? What reasons did the dr give u?...I am curious as it could be for a valid reason that I am not aware of....it is possible it is putting pressure on some nerves ect.....
I have seen the name b4, but not sure where or y.....but having a dr u r comfortable with is very important I am glad u feel this way with ur son's dr.
The least common form of spina bifida is a posterior meningocele (or meningeal cyst).
In a posterior meningocele, the vertebrae develop normally, however the meninges are forced into the gaps between the vertebrae. As the nervous system remains undamaged, individuals with meningocele are unlikely to suffer long-term health problems, although there are reports of tethered cord. Causes of meningocele include teratoma and other tumors of the sacrococcyx and of the presacral space, and Currarino syndrome, Bony defect with outpouching of meninges.
The list of signs and symptoms mentioned in various sources for Sacral defect and anterior sacral meningocele includes the 8 symptoms listed below:
Abnormal tailbone development
Partial absence of tailbone
Many time those with TC have it bcuz a cyst forms and joins the cord to the spinal column...it could be the cyst and the other abnormalities the dr is going to repair as well as TC.
Good luck on friday and I am sending Good Vibes~~~~ and prayers for ur DS, U and all those in charge of his care.
"selma" Read More At : ...