MS patient with low grade Chiari
Hello and Welcome to the Chiari forum!!
Wow..they had a lot to say on your MRI!! I took a medical terminology class but most of that is way out of my league.
It does seem to me that they find that there is overcrowding of your cerebellum accompanied with a slight herniation into the foramen magnum ( the opening in your skull where the spinal cord passes through). I am thinking that the herniation must be less than 5 mm which is why the called it Chiari 0. From what I understand, they couldn't see any kinking of the brainstem (very good), no syrinx or widening of the spinal canal, and no hydrocephalus(build up of fluid in the brain).
All of this is good but that doesn't mean that Chiari is not causing symptoms because your CSF flow could be blocked. It also mentions some kind of change in the atlanto-odontoid joint ..which says to me that there are some changes in your cervical spine that are consistent with Chiari. I was told by my NS that usually it is a change in the cervical spine that causes Chiari to become symptomatic.
It sounds like all in all that they don't think Chiari is causing much of a problem and that they are finding more evidence that it's MS?? Just a guess there though..
May I ask why you had a MRI? Was it a regular MS followup or was it due to some new symptoms?
It will be really hard to differentiate MS symptoms from Chiari ones b/c they are so much the same...most of us are first tested for MS when our symptoms appear.
My suggestion is to try and get a Chiari specialist to look at your scans..they are the best ones to give you an idea of how much trouble the Chiari is causing. We have a list of specialists here that the forum members have put together.
Or for a small fee you can send your scans into The Chiari Institute and they will look them over and let you know if they think it something they would look into.
As for if it will get worse...if you NS determines that it is causing some symptoms for you, most of us do find over time that it does get worse. Some of us progress quickly and others it has been causing them symptoms for years. Again, this is another thing that really only a NS can tell you b/c they need to assess the overcrowding, whether there is CSF blockage and then compare that to your symptoms.
Good luck to you...I am really truly sorry that you have both conditions to deal with. Take care and please let us know what you find.
Carolyn Read More At : ...