Hi and welcome to the Chiari forum.
I am so sorry for ur DD and what she is going thru and urself for having to see ur child in pain.
U mentioned that CSF flow was normal, was a CINE MRI done? Did they also do MRI's of her cervical , thoracic and lumbar spine?
Many Drs will only look to the brain and cervical spine MRI and not look further, but Chiari has related conditions and issues that should be reviewed b4 surgery is considered an option.
U said symptoms increased, may I ask what is going on?
AS I said Chiari has related conditions and issues and it can be one of those causing the increased symptoms.
Make sure the Dr u will see is a true Chiari specialist and will test her for ALL related issues b4 suggesting treatment.
With her being so young, sleep apnea is a must to be tested for...and ruled out.....tethered cord, syringomyelia,disk issues like scoliosis, ehlers-danlos, ICP, POTS.....
I know this is a lot and u r already over whelmed and frustrated, but I mention this bcuz it is important, it can affect how she feels and heals post op if she is considered a surgical candidate. Read More At : ...