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Info request

I asked this on the wrong forum so will try again.  I had estrogen sensitive cancer (both breasts and 3 lymph nodes) 6 years ago.  I did radical mastectomys, Chemo (TAC), radiation and 5 years Arimidex.  This Aug, I was diagnosed with mets. to bones....so far no organs.  I had long gamma nail implants to both femurs as legs were almost certain to break.  I have had rads to legs and spine.  I am on Aromasin daily and Pamidronate IV every 4 weeks.  I am not doing very well after second Pamidronate treatment and wonder if I sho

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Calling all Chiarians with pseudomeningocele~~~

  ....BTW- if u already have ur story/.experience posted in ur journal...please post a link in this thread so we know who u all are and have access to all ur stories and info...thanks again : )
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Getting Meds - Help and Info Needed - II

I am sorry you are still struggling with the eating. Have you tried making smoothies? They are a great way to sneak veggies in. Carrots, greens etc and blend with fruit. Maybe it would be easier that way. Even get some protein powder in there and flax seed oil for optimum benefits. The 1/4 ativan is a very low dose so its great that it does help at times. Is that the dose you were put on, or what you are comfortable taking? Its good you have scheduled therapy appts for the time that your  support person is not available. If you need anyone to talk to day or night I am here and can help you even if its just to chat. Think of the success you will feel when you get through the stressful time. If you think you will be more comfortable starting your med when your support person is around then wait. If you have to and your doctor has given the ok, maybe try half a tab of of the ativan when needed over the next bit. My doctor(who has since retired) was amazing at providing me support and reassurance. If I wanted a test done to ease my mind he would do it. When he went on vacation I was in such a panic. But now I have a horrible doctor that doesnt help me out at all and I am still managing. I have no idea if I am being helpful or just rambling. Just know that I am here for you if you need me. If you want send me a message and I can pass on my email or text etc. Hang in there hun, you will get through this and come out a stronger person
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??????????????? input please!

You are not "bothering" us, so no need for apologies - if none of us posted there wouldn't be a site, lol . I shall have to do a little research and if no-one else has posted with an answer I shall share what I find. :-)
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May I request...

I think that is why some many children and parents get frustrated themselves.  It is called a 'spectrum' disorder because is varies from very mild to severe.  Those on the milder side are perfectly capable of recognising they have a difficulty, and in some cases what that difficulty is, but they may not understand it is because of Aspergers.  They may just think they are 'odd' or 'stupid' or 'weird'.  From a clinical point of view the criteria for a diagnosis is black and white.  If you fall outside of that criteria you don't get a diagnosis.  Sometimes it is not just a question of whether a child can or cannot do a certain thing it is also the 'quality' of what they do and the 'frequency'.  So, for example, a child with high function autism or Aspergers may have imagination.  But they may only be able to show imagination (eg. write an essay) in their areas of interest.  Outside of that they may not be able to do it.  For example my son does have empathy, brings things to show me, has a sense of humour etc.  But not enough of it to put him outside of the criteria because there are occasions when he shows no empathy because he doesn't understand the situation, or he may tell me something he thinks is funny but he is simply repeating some dialogue he heard on the TV and if you haven't seen it it isn't funny but he doesn't understand that. The thing that is difficult for professionals is that how it affects every child is different.  And that also makes it frustrating for parents when, for example, a teacher says 'don't worry I have had a pupil with Aspergers before', because you know they don't know your child and they will say/do things that worked for the child they had previously but probably won't work for your child. I agree with you that it would be interesting/helpful to be able to list behaviours under the clinical diagnosis categories.
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Can the neurologist make this type of judgement with so little info?

No, it doesn't sound right. Many of these Doctor's are not really interested in helping as you found out. I've been down this road a time or two myself. Did this Doctor actually look at the scan or just go by the Radiologist's report? Even if the disc herniation and osteophyte complex aren't compressing a nerve, your MRI states that you've developed stenosis in your C-spine which can also cause all the symptoms you're having. The problem you have at T8-9 would also account for your mid back and chest pain. I would get a referral to another Neurologist. Take Care
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24-Hour Blood Serum Cortisol Test & The ACTH Challenge Test

You found some great information on the medical labs done. These blood labs are the only form of finding a critical illness with the adrenals and do not measure or see anything else except those 2 adrenal conditions. If a fatigue or weak adrenal issue is happening many patients go toward a saliva test to best determine if there could be concern with the adrenals in fatigue issues.
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fluctuating elevated anti TPO antibodies

I started with a diagnosis of FM and know what you mean about being dissatisfied with that dx.  I ended up with a list as long as my arm of dx, none of which was FM.  I think you are on the right track to keep pursuing it.  Can you get to a rheumatologist?  With a dx of FM and your thyroid test results, your family history and your other symptoms, I would recommend you see one.  An important thing to note, blood tests do not provide diagnosis.  They provide insight and indicators to the doctor that can be used to help point in the correct direction.  The combination of blood work, symptoms and physical evidence from an examination, MRIs and x-rays are used to diagnose a condition.  Please keep us posted on how you are doing and what happens next.  Good luck!
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Femara: Need Advice, Please.....

No personal experience here but after a drug is discontinued it takes various lengths of time for the side effects to subside. You should keep in mind that even though most of the drugs in that class have the same side effects BUT not everyone will experience them all OR to the same degree. Only the switch will tell you how Arimidex will affect you. I know of no herb that would have anywhere near the same action as the drugs that are being used now for Hormone suppression; if there were something it would be used in everyday practice.  It will just have to be trial and error I'm afraid .... Regards ....
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lupus, chiari, ms please help

They have a list of doctors.  It is a list that people her have used and liked.
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