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Fusion surgery L5, S1 3 yrs 9mths still in horrible pain

Can anyone give me any ideas of how to relieve my pain so I can live a halfway normal life without being miserable everyday. My first surgery was in June 2008 and they trimmed my discs. After surgery I was still in pain so in February 2009 they did a fusion on L5 and S1. That night in the hospita I was in excrutiating pain, I cried all night I just couldn't get the pain to ease and the pain was unbearable. I can't expalin how horrible the pain was. The next morning I went home with pain meds that did not ease my pain. At home I couldn't get into bed myself, my fiance had to pick me

Research, Knowledge and Information :

L4, L5, S1 Fusion Surgery - (#36682) - Community Advice

L4, L5, S1 Fusion Surgery. ... an L5/S1 laminectomy 13 years ago with great success by ... even longer than that because they were having pain still at 3 months out.
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L5 S1 fusion surgery - Lower Back Pain - Spine Health

I had L5 S1 fusion surgery 6 weeks ago. ... Had 2level fusion 6 years ago,l4/l5 s1, ... I still have a lot of pain.
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Spinal fusion - was it worth it for your back pain? -

... all of the pain. If I didn't have the spinal fusion I ... s1 l4 l5 fusion done about 25 years ago told i ... me to do the surgery. I'm still not ...
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Herniated Disc L5-s1 : I Had Spinal Fusion Surgery Story ...

May 29, 2012 · ... I Had Spinal Fusion Surgery. ... PT seemed to increase my pain. Im 48 years old ... I had the 3 level fusion from L5- S1 and it was horrible but ...
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"L5-S1 Spinal Fusion/Laminectomy 3 years of Pain and still ...

L5-S1 Spinal Fusion/Laminectomy 3 years of Pain and still ... I had fusion surgery on L5-S1 in Jan ... he always has to come around and help me up and thats horrible.
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Viewer Comments: Lumbar Laminectomy - eMedicineHealth

I had a partial laminectomy 3 years ago on my L4 L5, now I still ... months and I still have leg pain ... I had fusion hardware removed from surgery 8 years ...
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I am 34 and having a L5-S1 spinal fusion next week. I am very ...

I am 34 and having a L5-S1 spinal fusion ... in 20 yrs. Though i still have back pain i would of ... L5/S1. The pain on waking up from surgery was intense ...
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Spinal fusion: MedlinePlus Medical Encyclopedia

If you had chronic back pain before surgery, you will likely still have some pain afterward. Spinal fusion is unlikely to take away all your pain and other symptoms.
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Suggested Questions And Answer :

Fusion surgery L5, S1 3 yrs 9mths still in horrible pain

I am in the same situation.  I have had nerve blockers and a diskectomy  and laminectomy  3 weeks ago and nothing has helped.  My back pain is worse and my depression is also. I just cry all the time and want some relief so I can get back to life. It will be a year December 29th since the injury.
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FUSION EXPERIENCE(L5-S1) WANTED PLEASE (bjiferge/rescue 304?)

Hi, I had lumbar fusion surgery L1-L2 in May 2006. Needless to say the surgery failed and I am worse off and unable to work. Before the surgery I had been in pain for about 4 years due to past car accidents and past employments. It continually got worse and I tried PT, medications, cortizone shots, and finally a series of epidural shots. Nothing worked and I chose fusion surgery so that I could get back to work. It has never fused and I also have bulging discs that go into my nerves. I have sharp stabbing pain and shooting pain that goes down my right leg. I have had 2 other opinions and they say there is nothing else that can be down but manage the pain. I am on cymbalta and klonipin for my depression/anxiety. For pain I take butalbital compound, neurontin, soma, and oxycontin. If not for the medications I would not even be able to get out of bed. I hate to seem like gloom and doom but I wanted you to hear from someone that has failed fusion. I'm sure that it has helped some but there are many that it has not. Good luck and God Bless!!!!
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How long after cervical spinal fusion....

Welcome to the Back and Neck Community. Members are  here to provide assistance and support to individuals experiencing symptoms related to possible abnormal conditions of the spine. Advice given is non-professional and is primarily based on personal experiences I am sorry to hear of your continued discomfort.  I am 5 weeks post ACDF C4-C7 with cadaver bone and titanium plating.  I have been fortunate to have almost complete relief of my neck, shoulder and arm pain.  I still have some muscle spasms and pain in my shoulder area due to the positioning on the OR table, but that is getting better slowly. How compromised were your spinal nerves and/or spinal cord prior to surgery?  Did you undergo a lot of conservative treatment before surgery was done? My neurosurgeon told me not to expect full pain relief for weeks or longer as nerve recovery can be "tricky".  His estimate was approximately 1mm per day.  He thought my recovery was unexpected, but stated that some people get either immediate relief or the recovery can take much longer.  Has your surgeon recommended physical therapy? Did you wear a collar postop?  (I did not, my surgeon felt that the hardware was sufficient to stabilize my neck). Hopefully there are some other members of the forum who may have had a longer recuperative period and can offer you some ideas related to how they coped during their recovery.  I hope you notice effective relief soon.
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Fusion in low back

Hi! I am sorry to hear about your medical problems. Buttock pain can be a neurological (sciatica) or a vascular problem. A wrong posture on a job that involves sitting for a long time too can precipitate this. History of taking injections in the buttocks in the recent past should be looked into. A number of times old injection sites start troubling if undue pressure is put on them as in prolonged sitting. This will respond to hot water bags below the buttocks at night or kept for sometime while sitting too. Another possibility is ischiogluteal bursitis. This is inflammation of the bursa that lies between the ischial tuberosity of the pelvic bone and the tendon of hamstring muscle. The bursa may show inflammation without any cause or in association with hamstring tendinitis or inflammation of tendon of hamstring. The pain increases on stretching. Myofascial pain or trigger points in the Gluteus medius muscle and Piriformis muscles of the buttock can cause pain in the buttock area which may radiate to thighs. Stretching the muscle increases the pain. Please consult your doctor regarding this. Take care! The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.
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cerebellar ptosis/ brain slump

Hi ....welcome to the chiari forum. Since u went to a NS that was not the original surgeon I am sure it is bcuz of ur dx.....and the reason the second dr refused u is not bcuz there isn't something that can be done, but many will not take on something started by another, u do not have a "virgin" back or neck.....there r some chiari specialists willing to help those that have been worked on b4....Dr Oro in CO and TCI in NY will help when most others will not. From what I understand ur condition is the result of ur decompression and the area was made too large and it allowed ur cerebellum to fall back down.....u need a dr that will use possibly the titanium mesh plate to hold it up in place. There may have been one other member that I can remember, I will see if I can find the info.... let us know what area u live in and we can try to find a way to get u help. "selma"
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Pain meds during pregnancy

there are many here that will help you so stick around and keep checking.  glad you came here and found this group.  It is very active and there will be help.
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